Thursday's results (December 10) again show the myeloma to be stable. M-Spike, IgG, and light chains all about the same as 28 days ago. Stable is good - my myeloma and I are at a standoff. Let's hope that continues without the DEX. More actual test results are listed below and from the righthand panel.
No noticeable improvement, so clearly the ashwagandha isn't helping much. Of course it's possible that the myeloma has begun to figure out the pomalidomide, so M-spike would be higher without the ashwagandha, but I doubt it.
First of all, maybe the DEX doesn't need to be replaced. But I'll see if I can find something that will help the pomalidomide, so that I don't have to go back on DEX. In my own earlier efforts to find a treatment, I had thought that nothing did much good, because M-spike never seemed to go down or even stop climbing. Looking back, though, I can see that IgG did stop climbing for a while, even if M-spike didn't seem to, when I was on my "kitchen sink" regimen, taking low-dose naltrexone (LDN) with curcumin, quercetin, resveratrol, and EGCG. The truth is that M-spike can't actually climb much when IgG is stable, so M-spike was probably more stable than I thought back then. Now, what would happen if I replaced the DEX with the kitchen sink stuff?
Oh, that's right, LDN is a prescription, so I'd need to discuss that with Dr L and I doubt it would be permitted as part of the study. I need a substitute. LDN is thought to work by causing the body to release endorphins which help somehow, possibly just by inducing a very sound sleep. Well, ashwagandha does that too, at least it seems to put me to sleep. So I guess I'll keep taking the ashwagandha at bedtime. Here's the new regimen, to be merged in with the other supplements that I take:
|Ashwagandha ||225 || ||mg |
|Curcumin ||8000 ||mg |
|Quercetin ||4000 ||mg |
If those don't seem to make a difference after a cycle or two, I may try resveratrol and EGCG next. We'll see. Meantime I have to order more of the supplements. The full updated supplement regimen will be available from a link in the right-hand panel soon.
Wild Alaskan Salmon Oil:
Wild Alaskan Salmon Oil. It is made by a company calling itself Alaska Protein Recovery, LLC, and purports to be (1) Free of mercury and other heavy metal pollutants (because Alaskan waters are low in pollution), (2) from a certified sustainable wild-salmon fishery, and (3) "proud to be made in the USA" (i.e. not from China). Two 1000-mg capsules supply 600 mg of omega fatty acids, including DHA 220 mg and EPA 180 mg. I must admit that I don't know if that is good or not - I haven't studied fish oils. The flax oil that I already take shows different fatty acids on its label, so comparison is difficult. I have been taking two flax oil capsules per day, and will now add two salmon oil capsules. Perhaps by the time I've used up the 180 salmon oil capsules I'll know whether this was a good idea or not.
Some current test results:
|Test || ||Sep 17 || ||Oct 15 || ||Nov 12 || ||Dec 10 || ||Remarks |
|M-spike g/dL ||0.9 ||0.9 ||0.9 ||0.9 ||Best tumor measure |
|IgG mg/dL ||1070 ||1020 ||1100 ||1090 ||Variation is normal |
|L FLC mg/dL ||2.54 ||2.68 ||2.61 ||2.36 ||L Free light chains |
|Calcium mg/dL ||9.9 ||10.3 ||9.8 ||10.0 ||Below 10.2 is best |
|Creat mg/dL ||1.1 ||1.0 ||1.0 ||1.1 ||Kidney, lower is better |
|HGB g/dL ||14.7 ||15.0 ||14.4 ||14.3 ||Hemoglobin, normal |
|RBC M/uL ||4.08 ||4.21 ||4.00 ||4.00 ||Red cell count, low |
|WBC K/uL ||4.1 ||4.2 ||3.9 ||3.7 ||White cells, normal |
| ||My Myeloma || ||A discussion of my myeloma, not very technical. |
|My Treatment History ||Not technical. |
|My Test Charts ||Graphic displays of several key test results over time. |
|My Test Result Table ||Best with a wide browser window. Very "technical."|
More ASH reports coming up.