tag:blogger.com,1999:blog-7107951278396437262.post3582456780724734875..comments2024-02-08T05:22:14.082-06:00Comments on Myeloma Hope: Infusion Number FiveDonhttp://www.blogger.com/profile/03923592545983795350noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7107951278396437262.post-40893853025307964782016-06-08T09:45:59.238-05:002016-06-08T09:45:59.238-05:00Hi Vic,
Your questions are really ones for your fa...Hi Vic,<br />Your questions are really ones for your father's doctor, I think. I'm 75 with no "comorbidities" (don't you love that word?) and I had no reaction to the initial infusion. Here is the blog post: https://myelomahope.blogspot.com/2016/04/pomalyst-and-darzalex.html <br />Even with no reaction, my first infusion took nine hours. It was done at an infusion center, not a hospital, but a hospital was nearby. I was happy that the infusion center nurses had prior experience in administering the initial infusion for other patients. According to the manufacturer's own prescribing information, about half of patients do experience some reaction, which of course would have made mine take longer. <br /><br />High IgA, by itself, may not be enough to suggest a change in treatment. I assume that your father's doctor has a reason based on real CRAB symptoms, or a history of them, such as low kidney function or bone lesions. If you have questions about that doctor's judgment, I suggest getting a second opinion.<br /><br />DonDonhttps://www.blogger.com/profile/03923592545983795350noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-34470331245957283112016-06-08T06:33:16.129-05:002016-06-08T06:33:16.129-05:00Hi Don. I really enjoyed reading your blog. I am w...Hi Don. I really enjoyed reading your blog. I am writing to in regards to my Father. He was diagnosed with smouldering multiple myeloma 4.5 years ago. He has been on Revlimid, Valcade, Kyprolis and now Pomalyst. His iGA numbers are around 2500 and do not seem to be dropping all that much lately. Our Doctor has suggested to put him on Darzalex (along with with Pomalyst) because of the incredible results that trails have shown. The reason I am writing is to ask if you think a 87 year old, who is in wonderful shape but has high blood pressure and anxiety issues, would be able to handle the initial infusion? I have read that the first treatment is administered in a hospital because of the side effects. My concern is the emotionally and physical impact that it will have on a 87 year old. He is currently feeling great and would hate to mess with it. Although this treatment I hear is remarkable. Thanks Don. Vichttps://www.blogger.com/profile/08341952662416026607noreply@blogger.com