tag:blogger.com,1999:blog-7107951278396437262.post992672960734188589..comments2024-02-08T05:22:14.082-06:00Comments on Myeloma Hope: Smoldering MyelomaDonhttp://www.blogger.com/profile/03923592545983795350noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7107951278396437262.post-46967080001677301122013-08-18T17:06:23.250-05:002013-08-18T17:06:23.250-05:00I have recently progressed from MGUS to SMM. I hav...I have recently progressed from MGUS to SMM. I have Iga Kappa, free light chains in my urine and an abnormal kappa/lambda ratio. From what my Drs are saying and through some research it seems I am well and truly in the 'high risk" section of progressing quickly to MM. My Drs are telling me that it will happen within 2 yrs. I am really considering early treatment but still do not fully understand the risks of doing this. I am having to have 8 weekly tests and then see my oncologist so will have to make a decision soon I think. Anonymoushttps://www.blogger.com/profile/17810073190476946228noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-56514897967342213202011-03-07T15:23:21.633-06:002011-03-07T15:23:21.633-06:00Hi Natalie,
Sorry to hear of your diagnosis, but ...Hi Natalie,<br /><br />Sorry to hear of your diagnosis, but glad that you discovered it before it hurt you!<br /><br />Myeloma is very different for different people. I know people who are still enjoying life after 18 years, and of course I know people who lived only a short time. My own myeloma has been called "low risk," because it progresses slowly, and I'm at almost 8 years & still running marathons. A lot of people are in that category. You will know a lot more when the genetics are complete. I hope you are as lucky as I have been.<br /><br />Meantime, I encourage you to discover the <a href="http://myeloma.org" rel="nofollow">International Myeloma Foundation</a>. They have an excellent hot line and can give you a straight answwer to lamost any question.<br /><br />If you happen to live in Minnesota, I encourage you to visit <a href="http://minnesotamyeloma.blogspot.com" rel="nofollow">Minnesota Myeloma</a>, which has links to may other resources.Donhttps://www.blogger.com/profile/03923592545983795350noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-21721265781086756662011-03-07T14:50:27.190-06:002011-03-07T14:50:27.190-06:00Just recd the dx of smoldering myleoma.. mid range...Just recd the dx of smoldering myleoma.. mid range l0% still waiting for the "genetic" aspects of the bone marrow biopsy. Should have this by next friday 3/l8. Full bone scan was negative for lesions and the urinalysis was incomplete. With all this I am totally scared about the progression of this..I have absolutely 0 symptoms. I scared & don't know what I can do. Dr. said that I will need close monitoring thru blood tests. What can you tell me & what is my life expectancy. I am 67 yrs old (female,Caucasion)Unknownhttps://www.blogger.com/profile/15990471884336419325noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-89212361884558101052009-08-15T21:36:32.202-05:002009-08-15T21:36:32.202-05:00Hi Don,
I read your story and thought I would dro...Hi Don,<br /><br />I read your story and thought I would drop you a line to see how you are doing. I'm struggling with MGUS and rising FLC levels.Unknownhttps://www.blogger.com/profile/11642892661246865793noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-64071123200346023342007-10-22T13:20:00.000-05:002007-10-22T13:20:00.000-05:00I have often wondered why great healthy food rarel...I have often wondered why great healthy food rarely looks as tantalizing and enticing as the unhealthy stuff. On that note <A HREF="http://www.sfn.org/index.cfm?pagename=brainBriefings_sugarAddiction" REL="nofollow"><BR/>sugar is now considered as or more addictive than heroin.</A> Good luck on breaking the addiction to quick carbs and sugar in particular.<BR/><BR/>I have found the ChampionJuicer.com to be my favorite counter top appliance. It is the easiest and best smoothies machine I have ever used. (I by no means have performed an exhaustive test of available merchandise). A handful of nuts, those fine fruits (fresh or frozen) and just about anything else I'm so inclined to add is pureed easily. I tend to mostly puree and reserve "juicing" for special occasions as I feel the fiber is an important part of my diet. BTW, Curcumin dissolves nicely in nut butter. I belong to a UnitedBuyingClubs.com local co-op from which I buy a large portion of my organic nuts, grains and the likes.<BR/><BR/>May your whole foods quest find you happy healthy, full and with tantalized taste buds.L.P. Cellshttps://www.blogger.com/profile/05190508759939133524noreply@blogger.com