tag:blogger.com,1999:blog-7107951278396437262.post29115228387727356..comments2024-02-08T05:22:14.082-06:00Comments on Myeloma Hope: Peripheral Neuropathy TreatmentDonhttp://www.blogger.com/profile/03923592545983795350noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-7107951278396437262.post-66617354168337576252013-12-16T16:06:28.396-06:002013-12-16T16:06:28.396-06:00In addition to vitamins, I would like to suggest R...In addition to vitamins, I would like to suggest Realief Neuropathy Center to people. My mom has had chemo-induced neuropathy in her feet and toes for 5 years now, and she recently started receiving laser therapy at Realief Neuropathy Center. On her very first treatment, she said she could feel the numbness temporarily go away in her left big toe. She described it as a flood gate of feeling being opened to her feet. This was incredible for her. She is continuing treatment this week, and we hope to see continued improvement. I would highly recommend this to others suffering from neuropathy. It's a non-invasive, drug-free treatment. It is considered an "alternative" health treatment, so it's probably not something your doctor will suggest to you, but who cares? You've got nothing to lose by checking it out.Anonymoushttps://www.blogger.com/profile/07821525249963452414noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-29486190918351158532012-10-15T11:15:31.988-05:002012-10-15T11:15:31.988-05:00Thanks Carol,
My neuropathy has stabilized and is ...Thanks Carol,<br />My neuropathy has stabilized and is not really much of a problem. The supplements are enough.<br />DonDonhttps://www.blogger.com/profile/03923592545983795350noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-41059145959137771422012-10-15T11:10:15.106-05:002012-10-15T11:10:15.106-05:00I don't know if you could take it or not but y...I don't know if you could take it or not but you can ask your doctor. I have MGUS not MM. I take Cymbalta and it dials down the pain from neuropathy.Carol N Wonghttps://www.blogger.com/profile/06873206816286352639noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-2734220742727075062012-09-07T04:18:21.295-05:002012-09-07T04:18:21.295-05:00The treatment method for neuralgia will greatly be...The treatment method for neuralgia will greatly be dependent on the type of neuralgia felt, <a href="http://neuropathy-treatment.org/" rel="nofollow">neuropathy in feet</a> and diabetic neuropathy had some similarities but would greatly differ on the long run.SEO Expert Benjhttps://www.blogger.com/profile/08149508580383734263noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-28742456611712030772010-05-12T15:00:09.069-05:002010-05-12T15:00:09.069-05:00My mom was diagnosed w/MM in January 2010. In Febr...My mom was diagnosed w/MM in January 2010. In February, she began receiving treatment for it, using Velcade. She's on a three weeks on, one week off basis. Two months ago, she began complaining of burning and tingling in her legs and back pain, and being unable to sleep b/c of the burning pain. Well, to combat the back pain, her oncologist ordered 10 visits for radiation. The back pain has subsided significantly, now she's suffering from what we think is neuropathy. Argh. Can't win here. The oncologist mentioned this before he ordered the radiation but asked to wait until the radiation to make sure it wasn't neuropathy. Now, after doing my research, I feel he should have attacked the symptoms of neuropathy early on, but he did not. I'm afraid she may have done damage to herself since she first complained about the pain. She went to the doctor's today to discuss her neuropathy, as, just yesterday, when I took her to get her fluids/hydration, she could barely walk after about 30 steps. It's like she's becoming disabled and can't walk anymore. <br /><br />I'll keep watching your post to see if you say anything more about your condition.<br /><br />Bravo to you for staying active!Ali Cat_Meowhttps://www.blogger.com/profile/13009759161194035166noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-54493768361207056982009-06-13T10:44:03.055-05:002009-06-13T10:44:03.055-05:00Don,
Could I pull part of this post off your blog...Don,<br /><br />Could I pull part of this post off your blog and place it on the front of the myelomaforums.com website and link the remaining article back to your blog? If your cool with it please message me back at Andy@myelomaforums.com<br /><br />Thanks,<br /><br />AndyAndyhttp://www.myelomaforums.comnoreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-10322357317991536082009-06-12T09:40:27.950-05:002009-06-12T09:40:27.950-05:00Hello. We do 600 mg 2x daily of ALA up to 2400 mg...Hello. We do 600 mg 2x daily of ALA up to 2400 mg/day along with the B vits (Folic Acid, B6 & B12 shots) and it works within an hour to help combat the PN symptoms. I know its different for everyone, but in looking over all the remedies I thought the dosing was kind of small. <br /><br />We've had no trouble with it effecting the oral chemo regimen, but during the hardcore chemo treatments, we switch to the neurontin just to be on the safe side and not interfering with the chemo. <br /><br />Best,<br /><br />Lori Puente<br />www.caringbridge.org/visit/davidpuenteLori Puentehttps://www.blogger.com/profile/11304096696996620733noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-84917862062623750652009-05-28T19:39:02.631-05:002009-05-28T19:39:02.631-05:00Don,
An excellent posting on peripheral neuropathy...Don,<br />An excellent posting on peripheral neuropathy, well done.<br />I feel PN is under estimated by myeloma patients and our medical advisors. There should be more done to highlight the issue and research undertaken to find a solution not just how to control it.<br />To find you cannot continue a myeloma treatment because of PN is devastating.<br />A very informative blog, I read all your postings. Good health.<br />SidSidhttps://www.blogger.com/profile/11123133496860716719noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-74170506866071843202009-05-18T07:53:00.000-05:002009-05-18T07:53:00.000-05:00Thanks, Nick,
Looks like MetaNX is a pill with B6,...Thanks, Nick,<br />Looks like <A HREF="http://www.metanx.com/" REL="nofollow">MetaNX</A> is a pill with B6, Folic Acid, and B12, available only by prescription. The manufacturer claims that the vitamins are in the most-bioavailable form.<br />Be well, DonDonhttps://www.blogger.com/profile/03923592545983795350noreply@blogger.comtag:blogger.com,1999:blog-7107951278396437262.post-71127326068931821602009-05-18T06:31:00.000-05:002009-05-18T06:31:00.000-05:00Don -
I am in treatment for MM at Arkansas under ...Don -<br /><br />I am in treatment for MM at Arkansas under Bart Barlogie and am heading in for my second transplant this week.<br /><br />One of their doctors prescribes something called MetaNX, which is a pill containing a bunch of B vitamins that has been very successful in reducing the incidence and impact of neuropathy among older diabetics. You might check it out.<br /><br />Had not heard the Dex has anything to do with PN. Based on what I know about Revlimid, to say nothing of CC-4047 (Pomalidomide?), PN shouldn't be a major factor from that, either. The primary culprits appear to me, from my research at least, Thalidomide and Velcade (which you haven't yet encountered, sounds like). <br /><br />Here's hoping you don't really have it!!! All the best to you in controlling your disease -- and if you ever decide to go the stem cell transplant route, I can tell you from personal experience, it' no big deal. :)<br /><br />Best wishes,<br /><br />NickNickhttps://www.blogger.com/profile/09733312143898687572noreply@blogger.com