Myeloma Hope

Still doing pretty well. I'm currently taking Darzalex monthly, Pomalyst 2 mg daily (28 days of 28), and dexamethasone (Dex) 8 mg weekly...

Not even close, doing pretty well actually, though I should post more often. I was diagnosed with myeloma in July, 2003, and according to my...

Blogging again. June 26, 2019. After a lovely, easy, three-year ride on a two-drug myeloma regimen, my right shoulder was hurting and a ...

Stable: Since April of 2016 my treatment regimen has been Pomalyst (pomalidomide) and Darzalex (daratumumab), with dexamethasone in the ea...

Before I started the current regimen, a PET scan last April 9 displayed five different lytic lesions, three of them in the spine.  Last Wedn...

They say there's no cure.  And "they" may be right, but there are a lot of things that we can do. Heard from doctors fairly ...

Friday, August 19, 2016: Wednesday I brought a Mayo Clinic blood draw "kit" to the local clinic, where they drew the blood and s...

June 22, 2016 Bright Sun: After the 10th Darzalex infusion, with daily 2 mg Pomalyst and weekly dexamethasone (DEX), IgG is down once ag...

Who is ICER? ICER is the Institute for Clinical and Economic Review.  As far as I can tell, it is funded primarily by insurance companies ...

Wednesday, May 25, 2016: My sweeties and I bought a nice bouquet of yellow roses to celebrate my latest treatment results.  In the last fo...

Weekly Infusion Number 6:  Blood draw, doctor visit, pre-medications, and Darzalex, about 6 hours total. I took 20 mg dexamethasone last n...

And the Orange County Marathon in California last Sunday, my 95th since diagnosis,  Whooee - still on track for 100 marathons this year. T...